So the conference is now over, which makes me sad, but it was a good wrap-up to a great weekend.
This morning we got up at the crack of dawn again (still around 7:15), to shower and have breakfast. This morning was just my mom and I at the breakfast table. We finished fairly quickly and just hung out in the large conference room before the opening lectures began. The day began with a lecture on “Gadgets, gizmos & the new world of syncope,” from Dr. Blair Grubb, which, from what I remember of it, had something to do with tracking syncope? Not sure- I have to go back and look at the slides for that one again… It was early. I was tired. (Those are my excuses.)
The day continued with several research updates, from Dr. Joshua Milner, Dr. Hasan Abdallah, and Dr. Satish Raj. Not gonna lie- It was really interesting. I do enjoy hearing about efforts to expand our ability to receive treatment as well as to promote advocacy for awareness and funding to figure out more treatment. There was probably some redundancy in there somewhere, but that’s okay. Point is- It was very interesting.
Going along with the morning’s motif of a desire for advocacy and awareness, I decided to go to the Dysautonomia Advocacy breakout session, which provided a lot of fabulous ideas on how to promote awareness in your community, and even on a larger scale. Everything from “cookies for a cure” to lighting up the Empire State Building. It was awesome to hear about what people have already done, are planning to do, and may plan for in the future lots to think about, going forward- I may have gotten a few good ideas for future awareness projects so keep an eye out for that in the coming months!
Moving on, at today’s lunch, we got our boxes containing a sandwich, a bag of chips, and a cookie, and sat down. Not too much later, another family sat with us. A guy named Matthew, around two years younger than myself, and his parents. We learned that they are from Western Canada and were going to be touring DC while they were in the area. They were really nice and great to talk to, and put up with all of my Canada jokes, which was good, too. (Did you have to drive through snow to get here? I bet it’s really nice up there during the two weeks of Summer)
We parted, and my mom and I headed to the vendor fair for a bit. I got a snazzy bravelet, supporting dysautonomia, and met the developers of a drink mix called Normalyte (which I’ll create a whole post about later!). We then went back to our room to change and go to the gym. I did that for a while and rushed back down to the conference center for the closing Q&A session before the conference officially ended.
And that’s a wrap! Keep following for more information from the conference. I took a bunch of notes from most of the sessions that I went to, so I’ll slowly start posting them on here, for reference. Admittedly, I took better notes in some sessions than others, but I’ll do my best to add to the notes I have to give as much info as I can.
Thanks for staying tuned and, as always, feel free to email me with any questions, comments, or just to say hi!