Ouch. ouch. ouch. owwww. ouch. pain. why??? Yeah, that’s fun to wake up to.
Normally, having Small Fiber Neuropathy in my feet and legs isn’t too horrible… A little foot cramping every day, no big deal. Even that, most people would probably find pretty uncomfortable. After around three years of dealing with it, though, I’m pretty used to my feet cramping. (And no, if you’re wondering, eating a banana doesn’t help… I get that a lot.)
This morning, though, my legs decided that they wanted to flip themselves inside-out and curl my feet into some pretty interesting contortions.They did this over the summer, too. Picture a charley horse in your calf. Now picture it in both calves. Now picture it in both calves at the same time. Now just imagine that cramping and contorting lasting seven hours while you writhe in pain on the couch, shamelessly watching TLC to distract yourself from my lower extremities’ desire to rip themselves from your body. So yeah, that’s what I woke up to this morning. Super fun. It didn’t last seven hours this time, which is fantastic! But I still feel like this: –>
Thanks to my cousin, Linda, swooping in to save the day, my legs stopped cramping after only about three hours.
What’s the secret, you may ask? ICE. Plain old frozen H20. How weird is that?? Seriously, this is something my doctor told me over the summer when this happened- if you stand on blocks of ice, the cramping will stop. I think it has something to do with freezing the nerves to make them fire less signals or whatever, but the point is the cramping stops! That’s not to say that it makes everything instantly better… If your muscles try that hard to rip themselves apart, they’re gonna stay pissed off for a while. As of now, my muscles from the knee down are just exhausted and sore. Now it’s time to apply heat, and lots of it! And Icy-Hot, and Advil…. and just generally managing residual pain, praying that the cramping doesn’t come back. And all it really took to fend off the majority of the beast was sitting like this for a while! –>
I guess the point I’m trying to make is that Dysautonomia can sort of be like that Bud Light commercial- “It’s only weird if it doesn’t work.” For me, this isn’t weird…. okay maybe it’s a little weird. But it still works! It may take a few hours, but who cares? In a Potsie’s world, a few hours is NOTHING! Symptoms can last for years, so a few hours is totally manageable. Painful, but manageable. Okay really painful. Leg cramps are no fun, so I totally sympathize with anyone else that gets them. Monday I get to see if I can get more drugs. GO DRUGS! I like drugs.
In the mean time, wish me luck! And to those of you that get foot or leg cramps, I’m so sorry! It SUCKS….. And thank’s for reading my ranting again!
As always, If there’s anything in here so far that you can identify with, keep reading as I post. If you can’t relate, but want to read more about my journey as I carry on, keep reading. If not, then I hope you learned something about POTS.
Please message me!- firstname.lastname@example.org
To all my fellow Potsies, good luck out there!
PS- Can’t have a post titled “Ice, Ice, Baby” without this: